Lucia Parker

Crossing the Canyon: Susan’s Story

by Lucia Parker on October 24, 2016 Comments Off on Crossing the Canyon: Susan’s Story

This is a guest post from Susan Ely who crossed the Grand Canyon in memory of her mother and her brother. Thank you, Susan, for sharing your story.

I crossed the Canyon in memory of two of the most loved and inspiring people in my life.

I crossed for my mother, Kathy Perritano Ely, who passed away when I was in second grade from an Astrocytoma brain tumor. She was loved by many and stories about her fill my heart with so much love and so much yearning. She was admired by many – both loved ones and strangers. People have told me that she had the biggest heart and that she always treated everyone equally and showed compassion for all. She loved the four of us children – Sarah (8 years old at the time she passed), her twins Kristen and me (7 years old) and the baby, Chris (five years old). My aunt still tells stories of my mother being the best of mothers. She talks about how she’d put the four of us in two shopping carts, playing and strolling us around, making motherhood look easy. Her love for us was unconditional.

And I crossed for my brother, Christopher Michael Ely, who passed away just two days after Christmas last year from Glioblastoma, Stage IV brain cancer. It took him quicker than any of us had ever imagined after a fight that, to witness, will never match up to anything else in my life. He was like my mother in the way he always put family first and he was a true gentlemen to his core. Chris always had a please and a thank you, a wink and a smile to make your troubles go away or to put you at ease. He may have been the youngest, but he was known as the big brother, giving advice and sticking up/by us sisters through all. He was wise beyond his years and he put others first, especially his family. Even when sick, his children and wife came first. He loved them more than anything and they were constantly on his mind and in his heart. He loved them with an unconditional love that will forever be truly admired.

Grand Canyon National Park by Susan Ely

What were your first few steps into the Canyon North Kaibab Trail  like? How were you feeling? What were you thinking about?

I was a bit nervous but excited to be heading down into the Grand Canyon with brother’s wife Kristen Ely. My brother, mother, sisters and family were in my thoughts. I was wishing we were all together on this trek but, was so thankful to share this journey with my sister-in-law. I was also hoping I wouldn’t fall and was excited to see the magnificent colors of the Canyon as the sun rose. I’d heard that it is a spiritual place and no words can describe it. Both turned out to be true.

Grand Canyon National Park sunrise North Rim

Describe the most difficult part of this experience. How did you get through it?

The most difficult part of the journey was the climb up the South Rim. The switchbacks started to take a toll. I was nauseous, too, at elevation and after hours in the sun. I fueled up on salty food shared by those hiking beside me. It was grueling. Yet it was a journey that led me to dig deeper physically, emotionally and spiritually. Luckily, I had a small group of people that inspired me and helped me fight through the struggles to climb to the top. But most importantly, I was inspired by my mom and brother, who were with me in spirit along the way. I could see my brother’s feet from when he was in physical therapy. The courage, determination and grit he had every day to try and get back up, no matter how tired or exhausted he was during his illness, just so he may have the chance to walk and playfully chase after his kids again. The thought of his feet guiding my feet every step of the way back up to the top led me farther.

What was it like taking your last few steps out of the Grand Canyon on Bright Angel Trail?

The last few switchbacks were emotional and exhilarating. We met a couple a mile from the top and their words were beyond uplifting and encouraging. Not only were they excited about why we were crossing and how far we had come, but they also shared their gratitude for our cause and told us about a friend whose son had recently been diagnosed with brain cancer.  Their words and encouragement, on top of the memories of my mom and brother, flooded my thoughts and emotions. Being at the top with a small group of incredible individuals that helped inspire me and encourage me as the sun was setting over one of the most magnificent views, overwhelmed me with such beauty it brought me to tears. So much hope and so much love. It was a moment I will never forget.

The couple Susan mentioned insisted on taking a photo of us. I’m glad they did. The woman greeted us by saying, “I can tell you’re coming to the end of a significant journey.”

What do you think you’ll carry with you from Crossing the Canyon 2016?

I will carry the stories shared, the hike and climb for our loved ones and thoughts of all those we’ve lost and those who are still fighting. I will carry hope that future generations won’t have to experience this unimaginable prognosis and loss. I will carry hope for a cure for this awful disease and I will carry the knowledge that we are not alone, that others share the same fight and the same hope.

We are honored to have shared this journey with Susan and Kristen, in memory of Susan’s mom and Chris Ely. In addition to her courage and encouraging spirit, Susan brought the gift of her amazing talent for photography. Many of the stunning photographs of the 2016 Crossing the Canyon event are hers.

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Lucia ParkerCrossing the Canyon: Susan’s Story

Crossing the Canyon: Gail’s Story

by Lucia Parker on October 24, 2016 Comments Off on Crossing the Canyon: Gail’s Story

This is a guest post from Gail Zaharek, who joined us for our 2016 Crossing the Canyon event. She crossed the Canyon for three brain cancer warriors in her life. Thank you, Gail, for sharing your story and being part of this effort to cure brain cancer.

I crossed the Canyon for three people in my life. The first part of my hike was dedicated to Jon Bass, husband of my good friend Kristen Erikson Bass. Kristen and I spent a lot of time rowing in a double as Jon’s health declined and Kristen found solace in rowing with all she and her boys William and Christopher were going through. Jon lost his battle to brain cancer in 2007. I am so happy to say that Kristen and I are back rowing (and laughing) together. The second part of my hike as I crossed the floor of the Canyon was dedicated to Anne Murray, sister to my husband, Mike, wife to Sean Murray and mother to Brendan. Anne has endured over 13 years living with multiple cancers. She is currently living well with brain cancer and lives more life than many of us. Always hopeful and maintaining a sense of humor, Anne has been on many adventures, crossed off more bucket list items than most ever get to. She is currently off chemo for the first time in years – and is healthy! The final part of my hike – the ascent up the Grand Canyon was dedicated to my best friend from college and maid of honor, Michele Washburn. Michele was the strongest fighter I have ever known. We rowed together on the Ithaca College crew and she was always able to surpass her expected strength and power for her size. It was my goal to finish the ascent strong, which I did. I did not stop once in the last 3.5 miles. Michele’s strength carried me through.

What were your first few steps into the Canyon on North Kaibab Trail like? How were you feeling? What were you thinking about?

It was strange starting out in the dark, mysterious not knowing what we were getting into. The first hour we kept peering around anticipating the sun rising so we could actually see the magnificence of where we were!
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Describe the most difficult part of this experience. How did you get through it?

The ascent back up the canyon was extremely challenging, both physically and mentally. The altitude had a big impact and the last 3.5 miles are a relentless, steep climb. I dedicated the final climb to my college friend who died of brain cancer 2.5 years ago. She was a fierce competitor who I called on for strength.

What do you think you’ll carry with you from Crossing the Canyon 2016?

 The connections I formed with the people who went through this with me will never be forgotten. Whether people knew someone with brain cancer or were there to support the cause, we were all taking on an extreme physical and emotional feat that will never be replicated. It was a special adventure I will never forget.
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 Gail is part of a wonderful group who joined us for this event from Primacy, an award-winning digital agency currently developing a ground-breaking virtual reality platform to amplify the impact of change-making organizations (among other amazing projects!). We owe Primacy a debt of gratitude for all they have done to support us in our mission since we met through Google’s Giving through Glass Initiative in 2014. The way this team harnesses new technology, creatively applying it to connect and empower and to make the world a better place is so inspiring. 
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Lucia ParkerCrossing the Canyon: Gail’s Story

Crossing the Canyon: Anne’s Story

by Lucia Parker on October 23, 2016 Comments Off on Crossing the Canyon: Anne’s Story

On October 11, 2016 Anne Paparella and 17 others crossed the Grand Canyon on foot, in one day. Beginning on the North Rim 9,000 feet above sea level, we took our first steps into the canyon before dawn. Thirteen hours later as the sun set, the last of the team reached the South Rim on Bright Angel Trail. The journey was 23.5 miles and tested us against 10,000 feet of descent and ascent. As we hiked together, we shared our stories, hope and encouragement. Thank you, Anne, for sharing your reflections from the journey.

I was honored to begin this journey walking for my sister, Jenny.  As I trained and fundraised, it became so much bigger. In my community, I know so many people who have been affected by brain cancer, and I walked in honor and memory of them.

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Anne wore this shirt, covered in the names of those she walked for, in her Crossing the Canyon effort.

What were your first few steps into the Canyon on North Kaibab Trail like? How were you feeling? What were you thinking about?

 I was so excited to be part of this group. I was nervous but felt ready to descend!
Anne in the early dawn light of the North Rim of the Grand Canyon

Anne stops for a photo in the early dawn light of the North Rim of the Grand Canyon.

Describe the most difficult part of this experience. How did you get through it?

 The most difficult part of Crossing the Canyon was ascending Bright Angel Trail. The altitude caused breathing issues. I decided it didn’t matter how long it took, that I would make it out. I concentrated on the next step, one foot at a time and tried not to look at how far I had to go, but focus on how far I had come.
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Susan, Rob, Anne, Lucia and Carly (plus Maria, behind the camera!) in the last few miles of Bright Angel Trail.

What was it like taking your last few steps out of the Grand Canyon on Bright Angel Trail?

 The last few steps on Bright Angel Trail were so amazing, it was still light but the sun was setting. It felt like miles to go and then we were there. I was so proud of myself and humbled by the challenge. I could not have done it without the support and encouragement of my little group.

What do you think you’ll carry with you from Crossing the Canyon 2016?

 Crossing the Canyon was the most difficult physical challenge I have ever been part of. It made me realize how grateful I am to be able to walk and climb and have great health. I truly loved this experience and was honored to be with so many determined people. I felt loved and supported by my community back home too. What a gift to be able to spend time with my sister and niece and to meet so many lovely people along the trail.
Maria and Anne stop for a photo early in the morning on the North Rim.

Maria and Anne stop for a photo early in the morning on the North Rim.

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Lucia ParkerCrossing the Canyon: Anne’s Story

Crossing the Canyon: Nike’s Story

by Lucia Parker on October 22, 2016 Comments Off on Crossing the Canyon: Nike’s Story

On October 11, 2016 Nike Beddow and 17 others crossed the Grand Canyon on foot, in one day. Beginning on the North Rim 9,000 feet above sea level, we took our first steps into the canyon before dawn. Thirteen hours later as the sun set, the last of the team reached the South Rim on Bright Angel Trail. The journey was 23.5 miles and tested us against 10,000 feet of descent and ascent. As we hiked together, we shared our stories, hope and encouragement. Thank you, Nike, for sharing your reflections from the journey.

I crossed the canyon to honor my sister Dana and the many, many other friends who have lost their lives to brain cancer. Dana was my little sister and only sibling. She was diagnosed with an anaplastic astrocytoma at the age of 25. She had recently been married. Doug and Dana loved each other immensely and were determined to live life to the fullest, even after a death sentence. Dana was a gutsy, determined person who would not let brain cancer get in the way of what she wanted to do. The most important thing to her was to have a family. After her initial radiation treatments, Dana stopped taking all her anti-seizure medications and became pregnant. It was a perfect pregnancy and on April 30, 1996, she gave birth to Kati – my beautiful niece! After Kati’s birth, Dana felt a renewed sense of purpose and resolve to help others battling brain cancer. It was at that time that she decided to create a 5k run/walk to raise awareness, community support and research dollars for brain cancer patients. May 7, 2017, will be the 20th anniversary of the Race for Hope. In the past 20 years, the race has connected thousands and thousands of families facing this disease, given hope to survivors, and raised over $27 million for research. It is an incredible legacy that Dana leaves behind. She created a ripple effect…survivors and loved ones who have participated in the race have gone on to inspire others to get involved and make a difference.

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What were your first few steps into the Canyon on North Kaibab Trail like? How were you feeling? What were you thinking about?

As we descended into the canyon in the predawn darkness, I felt excited to start this unique journey. I didn’t think about whether or not I could make it – I had to make it, there was no other scenario. This mindset reminded me of when my sister Dana and I co-founded the Race for Hope DC with our friends Lionel and Sandy Chaiken. We had never created a 5k run/walk before, but it had to be done because it was Dana’s wish. It had to raise awareness, it had to raise dollars for brain cancer research. During my Crossing The Canyon trek, I dedicated each mile to a friend of mine who has been impacted by brain cancer. The first mile was dedicated to Pamela Sue Chaiken, Lionel and Sandy’s daughter who passed away from brain cancer many years ago.
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Describe the most difficult part of this experience. How did you get through it?

Once we passed Indian Garden, the final 4.5 miles was probably the most physically challenging part of the trek. Hiking those last few miles with a 3,000 foot elevation gain put us to the test. I got through it thanks to my hiking buddies, Kieran and Rosie. The mutual cursing, laughing and numerous photo ops (which was code for “I have to stop right now and take this picture or I’m going to collapse!”) propelled us to the top!

Nike's Crossing the Canyon Story

Mandy, Kieran, Anne, Nike, Kristen and Susan smile on the South Rim.

What was it like taking your last few steps out of the Grand Canyon on Bright Angel Trail?

 The last few steps out of the Grand Canyon on the Bright Angel Trail were exhilarating and bittersweet. Thirty years ago, I hiked the Bright Angel Trail with my sister Dana. We were young and carefree and laughed at our lack of preparation for the strenuous hike to Plateau Point and back. Somehow we made it back to the top and promised we would return to the canyon one day. Sadly, that never happened. I miss Dana and wish I could have been on this epic hike with her. I’m sure she was with me in spirit (and she probably made the last few miles harder just to kick my butt!)
Nike Beddow's Crossing the Canyon Story

Nike and Dana took a photo right here at the entrance to Grand Canyon National Park on their trip to the Grand Canyon years ago.

What do you think you’ll carry with you from Crossing the Canyon 2016?

 I will forever carry street cred that I hiked Rim to Rim of the Grand Canyon! Most importantly, I’ll carry with me the conversations I had with my fellow hikers who had lost someone to this hideous disease or who had encountered other struggles in their lives but found hope and healing through this communal experience.
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Lucia ParkerCrossing the Canyon: Nike’s Story

Gratitude

by Lucia Parker on July 14, 2016 Comments Off on Gratitude

Marshall and Rob pedaled their first miles of Race Across America one month ago today. They took a right turn on Surfrider Way and climbed east out of Oceanside, CA. With them were twenty eight crew. Twelve days later, that team had grown to thousands.

I’m overcome with gratitude and something harder to define. It’s a familiar feeling – one that I feel especially keenly during and after Race Across America. This event, these thousands of people coming together around the same purpose, it’s a reminder that we are not alone. It’s powerful and unexpectedly beautiful. We share grief and loss, but most importantly we share determination and hope.

Here’s what that shared hope did this year:

  • Together we raised $48,118  (and counting). Every penny will fund desperately-needed brain cancer research. That’s 120% of our $40,000 goal!
  • 60,313 people watched videos sharing the stories of our racers.
  • 99,067 people liked, shared or commented on a Facebook post.
  • All in all, our stories reached more than 250,000 people.

Thank you to Marshall Reeves, Rob DeCou and to your crew Adam Darby, Jacob Bouchard, Jesse Reeves, Joseph Josephy, Ryan Jean, Tyler Jandreau, Chris Clemens, Tyler Clemens, Darla Workman, Gay Hunter, Holly Cunningham, Jack Church, Jamaica Lambie, Jim Robertson, Kim Godawa, Kristin DeCou, Kyle Downs, Madisyn Heistand, Sean Flanagan and Totsie Robertson. Thank you Aly Moser, Bryan Cereijo, Cole McCauley, JoDee Ahmann, Joe Mulligan and Luke Rafferty for capturing and sharing the stories.

Thank you to each of you who joined our team along the way, offering encouragement, giving to brain cancer research and sharing the stories of our racers with your communities. Together we can end brain cancer.

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Lucia ParkerGratitude

RAAM 2016: Meet Rob DeCou

by Lucia Parker on November 16, 2015 Comments Off on RAAM 2016: Meet Rob DeCou

We flew back from the 6-12-24-hour World Championships in Borrego Springs, CA yesterday with that unique combination of exhaustion and inspiration that accompanies ultra endurance events. Events like these bring together a special community who strive to test and redefine the limits of what is possible. Athletes and their crews do what the average observer might call impossible. And that’s why these events are our platform at 3000 Miles to a Cure. Our mission is bold and in some moments it seems unachievable or impossibly distant when we need effective tumor treatment options so urgently. But mostly, it is like the finish line of a 24 hour race or a 3,021 mile race – achievable, one pedal stroke at a time and with the support of  an incredible community of heroes who share the same goal.

Today, we officially welcome a new hero to our team – Rob DeCou. Rob is taking on Solo Race Across America 2016 for 3000 Miles to a Cure. He raced this weekend in Borrego Springs to kick off the intense training that will prepare him for the race from Oceanside, CA to Annapolis, MD this June. Rob brought with him a wonderful team of kind, passionate people to serve as his crew during the 24-hour race. We’re learning this is very Rob. He brings people together, makes connections and inspires loyalty and love that is a reflection, I think, of what he gives to each of his relationships and endeavors.

Some of Rob's crew at this weekend's 24 hour race in Borrego Springs, CA.

Some of Rob’s crew at this weekend’s 24 hour race in Borrego Springs, CA.

Rob recently shared this Theodore Roosevelt quote in a blog post he published before the World Championships, “It is not the critic who counts; not the man who points out how the strong man stumbles, or where the doer of deeds could have done them better.  The credit belongs to the man who is actually in the arena, whose face is marred by dust and sweat and blood; who strives valiantly; who errs, who comes short again and again, because there is no effort without error and shortcoming; but who does actually strive to do the deeds…who at the best knows in the end the triumph of high achievement, and who at the worst, if he fails, at least fails while daring greatly, so that his place shall never be with those cold and timid souls who neither know victory nor defeat.”

Rob is taking this particular step into this particular arena because he lost a good friend, Christina Ahmann Nevill, to brain cancer. Race Across America 2016 will begin almost three years to the day that she died. Christina’s response to her diagnosis continues to inspire Rob. She chose to live abundantly, regardless of what came her way. Read more about Christina’s beautiful legacy here.

Rob is intentional about how he lives and what he pursues. He seeks growth and supports it in his community. He wrote, “from an early age I have sought the arena. I’ve been surrounded by outstanding men and women and watched them step into the arena, often getting hammered in the process.  After some time I kept watching them and noticed they get stronger, more resilient, and are people of character, discipline, and courage over time.  Thankfully it struck me at an early age that this was going to be my path.  I choose the arena, with all the pain, struggle, apprehension, that it has to bring.”

We are honored to call Rob and his friends and community team mates, to welcome them to follow in the pedal strokes of Maria Parker, Jacquie Schlitter and Rob White, whose efforts in Race Across America, together with our whole community, have raised more than $160,000 for brain cancer research and have given hope to those fighting brain cancer.

Welcome, Rob DeCou. Thank you for believing that #impossibleisunacceptable in this race.

Rob and his crew chief Sean at the 24 Hour Worlds finish. Sean will be joining Rob's RAAM 2016 crew.

Rob and his crew chief Sean at the 24 Hour Worlds finish. Sean will be joining Rob’s RAAM 2016 crew.

Friends, family and supporters: If you’d like to help Rob get to the starting line, you can donate to help cover his RAAM costs here.

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Lucia ParkerRAAM 2016: Meet Rob DeCou